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The Transplant Network 2018-06-15T16:47:50+11:00 http://thetransplantnetwork.com.au/community/feed.php?f=2 2018-06-15T16:47:50+11:00 2018-06-15T16:47:50+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=543&p=919#p919 <![CDATA[Share your story • Re: insurance for overseas travel]]>                   Glad to hear your doing so well and helping others. 

Travel insurance is one of the painful things we have to deal with post transplant.  Especially if traveling to the US.  Example I've just booked a trip to Mexico for 3 weeks and I was able to get cover but it's costing me $1650 and my wife who is traveling with me is only up for $189. 

Insure and go are always my first choice. However they don't cover to the US if you have had a transplant. I am pretty sure they cover everywhere else.
They have another company under their umbrella called " All Clear Travel Insurance" they are the ones that have covered me but its expensive.

QBE said they would cover me but after someone from the transplant team filled in a form to say I was fit to travel.  I did this however they would only cover me for $100,000 for about $400 
but in the US $100,000 won't get you very far if something does go wrong.

The other company ive used in the passed was COVERMORE but I think at the moment they have stopped insuring transplant patients. 

They quite often change but this advice is current for 2018. 

Good luck

Statistics: Posted by Peter — Fri Jun 15, 2018 3:47 pm


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2018-06-15T16:37:47+11:00 2018-06-15T16:37:47+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=344&p=917#p917 <![CDATA[Share your story • Re: My day finally came.]]> My chief surgeon (liver transplant) remarked "we find transplants are a transformative experience". She meant mainly the emotional impact and improvement in morale. From a selfish snob, I became  ... er, one who Cares about people. You will know what I mean.

Statistics: Posted by MichaelO — Fri Jun 15, 2018 3:37 pm


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2018-06-15T16:32:36+11:00 2018-06-15T16:32:36+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=543&p=916#p916 <![CDATA[Share your story • insurance for overseas travel]]>
Briefly, I had a liver transplant in 2015 at RPA in Sydney. Today I am fitter than at any time since age 30: I am now 66.

When talking to people who are curious about liver transplants I say " you will feel no pain". I never had real pain at any time, not before, not during (of course not) and not after. And effectively 99% of operations succeed: you will not die.

But today i want to ask about INSURANCE FOR OVERSEAS TRAVEL. Companies seem unwilling to insure because during 2015 I had a non-serious rejection episode that took me very briefly back to RPA. I have been in excellent health for the last two years.

Any travellers out there who can give me advice. E.g. is it possible to "persuade" an insurance company by giving them a letter from my specialist?

Grateful any and all thoughts.
Cheers.
M.

Statistics: Posted by MichaelO — Fri Jun 15, 2018 3:32 pm


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2017-12-28T20:25:09+11:00 2017-12-28T20:25:09+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=454&p=613#p613 <![CDATA[Share your story • You actually are my final hope bois (((]]> Statistics: Posted by StevenNow — Thu Dec 28, 2017 8:25 pm


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2017-11-10T06:44:19+11:00 2017-11-10T06:44:19+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=351&p=503#p503 <![CDATA[Share your story • Re: Broncosopy and Pnuemothorax.]]>
Mate that must have been a scary day. The rejection waiting game is one we all have to deal with on and off and no matter the result you are always in good hands at vinnies!

Good luck with it all Adam

Keep us all informed.


Pete

Statistics: Posted by Peter — Fri Nov 10, 2017 6:44 am


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2017-11-07T04:26:07+11:00 2017-11-07T04:26:07+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=351&p=502#p502 <![CDATA[Share your story • Broncosopy and Pnuemothorax.]]>
Yesterday was my third Broncosopy since my transplant, it was to see if my new lungs were being rejected.
It was a very long day stay at hospital and after a little miscommunication on the fluid I could drink from 5.30am we eventually got started around 11.30am.
As usual at St Vincent’s your cared for incredibly by everyone. I was wheeled into surgery and attended to with so much care you can’t help but feel safe and comfortable.
When the procedure had finished and I was in recovery I noticed some pain in my left lung. I am currently healing from the “ Clam Shell” scar which is uncomfortable but that is ok, it will heal. The beautiful nurse gave me some pain killers which immediately made me comfortable.
I was sent for an X-ray where a pneumothorax was discovered in my left lungs. It happened in the procedure. I was told it may prior as they were scraping my lungs to obtain pathology for testing.
A second X-ray followed where it was identified again and then I had to wait for the pathology results. The whole time i was kept up to date and cared for. You can’t get any better.
When my results came back the amazing register doctor came explaining every detail of what had happened that day. I can’t thank him enough as it put into general easy to understand terminology of what was going on. My lungs are good and there is no signs of rejection. Stoked. He also explained about the pnuemothorax and that it was minor but needed to be treated with care. It hurts but another X-ray this morning at clinic will determine how we will treat it.
The reason for this entry is to let anyone know that we are in incredible hands and if there a question or response needed it is delivered straight away. Treatment is straight away. So if your waiting for transplant or newly received such as myself you have your mind placed at ease with the care of the of St Vincent’s Heart and Lung Clinic.

I love going to clinic as getting a grasp on my new life has been one of the most profound things to ever happen to me. It’s for the people you meet patients and staff.
I feel truly blessed.

Have a wonderful day

Adam

Statistics: Posted by WellsA — Tue Nov 07, 2017 4:26 am


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2017-10-21T15:38:35+11:00 2017-10-21T15:38:35+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=344&p=495#p495 <![CDATA[Share your story • Re: My day finally came.]]>
I have put it out there to friends and family to ask the questions at home with regards to Organ Donation. It’s surprising how many thought it was just on your drivers license?? Most have gone and registered now through mygov. I know I did.

Thanks again for creating an amazing platform to read learn and express. I will certainly post regularly.

Adam

Statistics: Posted by WellsA — Sat Oct 21, 2017 3:38 pm


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2017-10-21T09:25:51+11:00 2017-10-21T09:25:51+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=344&p=494#p494 <![CDATA[Share your story • Re: My day finally came.]]> Congratulations looking forward to continued updates on how your going post transplant.
No better feeling in the world than being handed your life back! A huge thank you to all the amazing families who make the selfless decision to donate.

Statistics: Posted by Peter — Sat Oct 21, 2017 9:25 am


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2017-10-21T05:17:14+11:00 2017-10-21T05:17:14+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=344&p=493#p493 <![CDATA[Share your story • My day finally came.]]> This time however felt right. I received a call the day before from the doctors saying there were potential lungs and they were a perfect match. With much dialogue with the team and some words of confidence from my specialists at RPA I was told to prepare for a call early Wednesday morning. That call came 4.50am. I will never forget that moment or morning.
It’s a strange way to describe that day of certainty. My regular nurse who lives in my suburb walked past my home as we were leaving for hospital. Then my transplant coordinator whom I had only spoke to met us by chance at the doors of Vinnies. My doctors described in detail that this particular donor is a 50/50 chance. Somehow I knew it would be different. Even the beautiful nurse who took care of me into theatre had a quirky name and we laughed.
The next thing I knew it was a day later at 4.50!!!! I know!!! Asking had I had the operation?? To which my life changed in an instant.
I was in ICU for two days and am up in the wards now. Lots of changes and adjustments but it’s worth it. My old lungs were so bad that they couldn’t believe I could breathe at all. My new ones though.... Pristine.

Needed to check in with the network as this forum is so helpful to air your view read other people’s stories and just keep grounded though what is quite obviously an enormous change to not only your life but your families.

Adam

Statistics: Posted by WellsA — Sat Oct 21, 2017 5:17 am


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2017-10-21T02:22:35+11:00 2017-10-21T02:22:35+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=11&p=492#p492 <![CDATA[Share your story • My Heart transplant story]]> Statistics: Posted by HerbeMannABg — Sat Oct 21, 2017 2:22 am


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2017-10-20T16:46:40+11:00 2017-10-20T16:46:40+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=338&p=490#p490 <![CDATA[Share your story • My First Call Up]]> Hope we will see many more from others too . I find them all very special . Thanks for sharing .

Statistics: Posted by HerbeMannABg — Fri Oct 20, 2017 4:46 pm


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2017-10-12T11:18:34+11:00 2017-10-12T11:18:34+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=338&p=483#p483 <![CDATA[Share your story • Re: My First Call Up.]]>
I continue to learn from that day. I received my discharge paperwork yesterday in the mail and a explanation of what happened. I also have spoken to my Doctors at RPA and their council has been incredible.
I feel so lucky to be firstly apart of the transplant program and involved with the Heart and Lung Clinic At St Vincent’s.
As we all know this is our journey and everyone’s journey is different.

I will never give up.

Adam

Statistics: Posted by WellsA — Thu Oct 12, 2017 11:18 am


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2017-10-12T09:41:15+11:00 2017-10-12T09:41:15+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=338&p=482#p482 <![CDATA[Share your story • Re: My First Call Up.]]>          Thanks for sharing your story with us all.  Reading your story definitely bought back some memories of what it was like getting the call.
I was lucky enough to not have to go through the disappointment of being called up and then told it wasn't to be. I remember all the emotions 
I was going through at that time and to be told it wasn't going to happen would have completely shattered me. I can't even begin to understand how that would have felt.

I am glad you continue to have such a positive outlook on it all. I wish you all the best and hope the call comes soon mate.

Thanks again for sharing.

Pete

Statistics: Posted by Peter — Thu Oct 12, 2017 9:41 am


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2017-10-09T19:52:02+11:00 2017-10-09T19:52:02+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=338&p=477#p477 <![CDATA[Share your story • My First Call Up.]]> My name is Adam Wells and I am in need of a bi-lateral Lung transplant. I have been placed on the active list for 19 days now and had my first call up last Tuesday. I would like to share my story and that day with you.
My Journey has been going since 2003 when I was diagnosed with sarcoidosis. It was acute at that stage and was being monitored by a specialist at Randwick. As the years moved so did the extent of the decease. It started to damage more lung tissue and then it helped form Bronchitis and most recently Pulmonary Hypotension of the right Ventricle to my Heart.
Last Tuesday’s Call was something that I have never experienced in my life before. It’s one thing to know a call will eventually come to you but when it did, boy did it dredge up some emotions. First was for the donors family second was fear of the unknown third was strength as I was ready and forth was love from my family friends and community. These thoughts were like a blood letting of raw emotions that I hadn’t experienced so profoundly before. I received the call at 7.45am and was asked to present myself to the clinic at 2.00pm. An X-Ray and 15 Viles of Blood Urine Sputum and Swabs were taken. I was briefed by the surgeons and my beautiful specialist.
I was then moved up to the ward.
At 5.55pm my specialists delivered the bad news, she was visibly upset as was her colleague. I wasn’t, it wasn’t meant to be. Everyone wants to win lotto but you need 6 numbers, I had only 5. Not my time. It’s coming though and I am better for the experience of that profound day.
From every negative there is a positive. How else do we learn and adapt?

Never give up.

Adam

Statistics: Posted by WellsA — Mon Oct 09, 2017 7:52 pm


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2017-09-29T18:06:51+11:00 2017-09-29T18:06:51+11:00 http://thetransplantnetwork.com.au/community/viewtopic.php?t=320&p=460#p460 <![CDATA[Share your story • Re: strength in a heartbeat, diary of a heart transplant]]>
Very worthy of a book.

Pete

Statistics: Posted by Peter — Fri Sep 29, 2017 5:06 pm


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