Last updated: 17 March 2023
The Transplant Network Incorporated (ABN 58 231 065 432) (TTN) is committed to managing personal information in accordance with the Australian Privacy Principles under the Privacy Act 1988 (Cth) (Privacy Act) and other applicable privacy laws.
TTN is a registered charity which was established to improve the lives of those who undergo a transplant and everyone they will come to rely on throughout that experience.
TTN seeks to build a supportive community where all benefit from the personal testimonies of others. To that end, patients, families, donors and doctors have the opportunity to speak and tell their own powerful stories. This avenue of personal contribution both empowers and connects patients every step of the way.
Our mission is to inform, empower and support transplant patients and their families to be well equipped to navigate their own transplant journey (Objectives). To fulfill these Objectives, we may ask to collect a broad range of personal information from you about your own experiences or to provide products and services to you.
Other terms and conditions may also apply to you, such as:
WHAT IS PERSONAL INFORMATION?
Personal information is defined in the Privacy Act as ‘information or an opinion about an identified individual, or an individual who is reasonably identifiable:
This is a very broad definition, however some simple examples of personal information include your name and date of birth. It is important to be aware that personal information also includes sensitive information (such as your health information) and financial information (such as your debit card number).
WHAT INFORMATION DO WE COLLECT ABOUT YOU AND HOW DO WE COLLECT THIS INFORMATION?
How do we collect personal information?
TTN generally collects personal information directly from you. We may also collect personal information about you from other sources, for example your social media (such as Facebook, Instagram or LinkedIn) or your family member and friends.
In summary, we may collect your personal information when you:
What information do we collect?
The type of personal information that we collect will typically include:
You can decide whether and how much personal information you would like to provide to TTN and you can always decline to give TTN any personal information we request. If you have any concerns about personal information we have requested, please let us know.
If you are under 15
TTN encourages people of all ages to share their transplant journey, however it is important that you only provide us with your personal information if you are 15 years of age or older. If you are under 15 years of age, you must ensure your parent or guardian provides your personal information to us on your behalf.
CAN YOU DEAL WITH US WITHOUT PROVIDING YOUR NAME OR OTHER PERSONAL INFORMATION?
For some types of interaction TTN will provide you with the opportunity of remaining anonymous or using a pseudonym (for example, when making a donation). However, this may limit our ability to engage with you.
Most of the time, you will have the option of not providing your name, or using a fake name, when you deal with us (where it is lawful and practicable). This includes for example, when you make a general enquiry.
In some circumstances, however, it will not be practicable for us to deal with you anonymously (for example, if you make a donation). In these circumstances, if we do not collect your personal information, we may not be able to provide you with the products and/or services you have asked for.
WHY DO WE COLLECT, STORE AND USE YOUR PERSONAL INFORMATION?
We collect personal information that is necessary to achieve our Objectives, and to carry out our business operations.
The main purposes for our collection of personal information are to build and grow TTN. This includes:
We may use your personal information for purposes which are incidental to achieving the Objectives, or for other purposes which are within your reasonable expectation or permitted by law.
The purpose for which we usually collect, store, and use your personal information depends on how you interact with us (for example, whether you are a subscriber of our content, provide a donation, participate in an interview with us or otherwise contribute to or participate in TTN), but may include to:
WHERE DO WE SHARE YOUR PERSONAL INFORMATION AND WHY?
We may share your information with third parties:
Some of the third parties we may share your information with include the following:
DO WE SHARE YOUR PERSONAL INFORMATION OVERSEAS?
We generally only collect and store personal information in Australia. However we may share some personal information with our external service providers located overseas (for example, we use service providers located in the United States of America to provide services to us in connection with email).
We only ever share your personal information outside Australia where we are permitted to do so under the Privacy Act. Generally this means we will take reasonable steps to ensure your personal information is treated securely and in accordance with the requirements of the Privacy Act.
There are other circumstances where we may share your personal information to an overseas recipient. For example, where you have provided your consent or we are otherwise permitted to do so under the Privacy Act or other relevant laws.
DO WE USE OR SHARE YOUR PERSONAL INFORMATION FOR DIRECT MARKETING?
When you provide your personal information to us, we may use that personal information to send you direct marketing communications to keep you informed about products and services offered by TTN (including any new content we have recently published) and carefully selected partners which we think might be of interest to you based on your interactions with us.
We may communicate with you (and send these electronic messages and tailored advertising) through various channels, such as via regular mail, email or SMS.
We will only send these communications in accordance with applicable privacy and marketing laws, and only where you have not opted out from receiving such communications from us.
You are always in control of the direct marketing communications which you receive and can opt-out at any time. Generally you can opt-out by following the relevant opt-out or unsubscribe instructions in the relevant communication (such as email or SMS message).
You can also contact us using our contact details set out below to tell us you would like to stop receiving direct marketing communications from us.
Importantly, regardless of whether you opt out from receiving any or all direct marketing communications, we will still communicate with you if we are required by law to provide you with information, or in relation to the services or products we are providing you with (for example, in relation to any donations you make).
HOW DOES TTN INTERACT WITH YOU VIA THE INTERNET?
When you use our website or receive communications from us, links to websites which belong to other third parties may be included (and are provided for your convenience). You should make your own enquiries as to the privacy policies of these third parties. We are not responsible for information on, or the privacy practices of, any third party websites.
In addition, when you make online payments using our website, we do not collect your credit card or banking details. This is because online payments are handled by third parties (Keela) – please use these links to see details of their privacy and security policies before making online payments.
HOW DO WE STORE AND PROTECT YOUR PERSONAL INFORMATION?
We are committed to protecting your personal information, and ensuring that we securely store any personal information we collect. We will generally only hold your personal information in electronic form.
We take all reasonable steps to ensure that any personal information we collect, use or disclose is accurate, complete, up-to-date and stored in a secure environment protected from misuse, interference and loss, and from unauthorised access, modification or disclosure.
We store electronic records in secure databases, using trusted third party storage providers based in Australia. We also maintain physical security measures in relation to storage of our electronic records (such as through locks and security systems at our electronic data stores). Using technical methods, we also maintain computer and network security. For example, we use firewalls (security measures for the internet) and other security systems such as user identifiers and passwords to control access to our computer systems.
Our websites use encryption or other technologies to ensure that your personal information is securely transmitted via the internet (including to protect any payments you make). We encourage you to exercise care when sending your personal information via the internet (for example, when communicating with us online, we ask that you do not include your full account or card details).
HOW CAN YOU ACCESS OR SEEK CORRECTION OF YOUR PERSONAL INFORMATION?
You are entitled to request access to any of your personal information that we have. To make such a request, please contact us using the details set out below.
We will take reasonable steps to ensure that the personal information we collect, use or disclose is accurate, complete and up-to-date. You can help us to do this by letting us know if you notice errors or discrepancies in information we hold about you and informing us of any change in your personal details (for example, if your email address changes).
If you consider any personal information we have about you is inaccurate, out-of-date, incomplete, irrelevant or misleading, you are also entitled to request correction of the information (again, please contact us). After receiving a request from you, we will take reasonable steps to correct your information.
We may decline your request to access or correct your information in certain circumstances in accordance with the applicable privacy laws. If we do refuse your request, we will provide you with a reason for our decision. In addition, if we refuse your request for correction, we will include a statement about your request with the personal information we store.
HOW CAN YOU MAKE A COMPLAINT ABOUT THE HANDLING OF YOUR PERSONAL INFORMATION?
If you have any questions or concerns please contact us using the details set out below.
Please also contact us in writing if you have a complaint about privacy. If you make a complaint about privacy, the following will occur:
If you are not satisfied with our response to a complaint, or you consider that we may have breached the Privacy Act (including the Australian Privacy Principles), you are entitled to make a complaint to the Office of the Australian Information Commissioner (the Australian privacy regulator).
The Office of the Australian Information Commissioner can be contacted by telephone on 1300 363 992, or you can fill out this form to make a complaint about our handling of your personal information. Full contact details for the Office of the Australian Information Commissioner can be found online at www.oaic.gov.au.
You can contact us using the details below:
THE TRANSPLANT NETWORK
1300 061 799
You can contact us 9am to 5pm, Monday to Friday AEST
The Transplant Network Incorporated is a registered charity with the ACNC. Donations over $2.00 are tax deductible.